Tuesday, June 29, 2010

Make-A-Wish Part I

Last Thursday night we had a wonderful visit with our volunteer team from The Make-A-Wish Foundation, Miss Margi and Miss Kayleigh. Chase's PT, Sarah, Special Instruction Teacher, Anissa, And Speech Therapist, Denise, were all there to help design the perfect therapy/sensory/play room for Chase. The entire room's theme revolves around this set of wall mirrors:



There will be a "starry sky fiber optic ceiling", tons of mirrors, tons of lights, a bubble tower that changes color to his voice, a trampoline, karaoke machine, lots of texture exercises, gym mats, a big storage shelf shaped like a wave, a big vibrating turtle, a water table, a spin top big enough to put him in and spin him around (lol), and a bunch of other therapy items and toys!

I can't wait!

Margi and Kayleigh stayed until around 9pm, at 10:30 that night Margi called to say she had gotten Alex and a friend each a spot at the "Geek Squad Academy" for 4 days in July! HOW SWEET is it that she was SO excited to have done something for Alex!?!? So Alex and Christopher (Paula's son and longtime friend of Alex) will be geeking it up together this summer! They'll be learning about making movies, editing music, etc.

As soon as we hear anything new I'll be sure to fill you in. XOXO

Monday, June 21, 2010

Before & After Pictures of our New Home!

Busy Busy! Yesterday was "Media Day" with the USDA. What a nice event! There were 23 people total including friends, family and Chase's therapists. The representatives from the USDA spoke first about our family (it was so sweet!) and gave us a giant key and big hanging basket welcoming us home. We were then given a chance to share our appreciation (I made Dave talk while I held a sick Chase, of ALL days for him to be sick) followed by a front lawn photo shoot :o). John, from the Batavia USDA office brought a ton of cookies and drinks provided by his wife! YUMMY! We were interviewed by the Clarence Bee, now I have to find out when the Bee comes out. lol I'd hate to miss it!

Since we've spent the last 3 weeks doing nothing but fixing up the house, we figured it's time to share some pictures!

DRUM ROLL, PLEASE!




Disco Balls!!!












Our favorite new spot!


Chase in a bag! (A gift from the USDA):


Our other big news is that Chase's pediatrician referred him to Make-A-Wish. They will be coming Thursday night, with all the therapists, to help plan a therapy room for him! He needs a place to play where he can throw himself around without us worrying about him hitting his head on a table edge! We're SO excited!!!

HAPPY SUMMER EVERYONE!!!

Friday, June 11, 2010

Chase and Anissa (his Special Instruction Teacher)

Sorry about the video quality...I took this with my phone...it's still adorable! :o)
video

Tuesday, June 8, 2010

A Work in Progress

Pictures of the house are coming soon! We've been working night and day to make it "our house" and we are thrilled so far. We've been working night and day on painting, light fixture changes, spackling. landscaping, tiling, cleaning, sorting and arranging, all in between greeting therapists, changing diapers, laundry, unpacking, amusing Chase, shopping at Lowe's :o)...I have a thousand phone calls to return and just as many thank you notes I'm behind on...ACK!

Pictures soon, I PROMISE!!!

XOXO