tag:blogger.com,1999:blog-2231220269769637838.post6272598132367810667..comments2022-03-27T00:15:26.272-04:00Comments on CHASE'S PAGE: New Wheelchairs, new ramps and Feeding Clinic Appointments, OH MY!Chasehttp://www.blogger.com/profile/15159773218928422067noreply@blogger.comBlogger5125tag:blogger.com,1999:blog-2231220269769637838.post-52418813773864679352009-02-21T14:43:00.000-05:002009-02-21T14:43:00.000-05:00I didn't realize that Chase was going to need a wh...I didn't realize that Chase was going to need a wheel chair. I'm glad that you are getting all set up with things that will make things easier for your family!Morganhttps://www.blogger.com/profile/12652107321069740503noreply@blogger.comtag:blogger.com,1999:blog-2231220269769637838.post-32935870228298143412009-02-07T05:08:00.000-05:002009-02-07T05:08:00.000-05:00I found your blog from Kayleigh's page. As an infa...I found your blog from Kayleigh's page. <BR/>As an infant I had a nissen fundo done and a g-tube put in, as a newborn, because I couldn't swallow anything. <BR/>As an adult, I had my nissen fundo redone (11-04) and a j-tube ( goes into small intestine, not stomach) (8-08) put in, because my stomach stopped working. <BR/>I know that Chase will be fine during thos surgeries, and I will be praying for you and him.Emily's Bloghttps://www.blogger.com/profile/17037884908112140503noreply@blogger.comtag:blogger.com,1999:blog-2231220269769637838.post-30341029494407865392009-02-06T22:20:00.000-05:002009-02-06T22:20:00.000-05:00Hi! I came across your blog from Kayleigh's and ju...Hi! I came across your blog from Kayleigh's and just wanted you to know Chase will be in our prayers! I have to agree with the other 2 posts, Chase is very handsome! It sounds like he is making great progress despite his diagnosis. What a guy! I think he is going to continue to amaze you. He is very lucky to have such loving parents.Kala Familyhttps://www.blogger.com/profile/03000421466644888016noreply@blogger.comtag:blogger.com,1999:blog-2231220269769637838.post-9878662408800775212009-02-06T21:58:00.000-05:002009-02-06T21:58:00.000-05:00Are you in Buffalo, NY? We live in Rochester but ...Are you in Buffalo, NY? We live in Rochester but 2 of our boys had nissens and gtube placements over the summer at Children's. Dr Caty (ped GI who did the surgery)was AMAZING!!! Feel free to email me...bjencik@rochester.rr.com anytime if you want to get a personal opinion about the surgery! Best of luck to you and...PS...Chase is adorable!!!!!<BR/><BR/>BrittAnonymousnoreply@blogger.comtag:blogger.com,1999:blog-2231220269769637838.post-6294560546336948622009-02-06T21:10:00.000-05:002009-02-06T21:10:00.000-05:00Hi! Just happened upon you guys on Kayleigh's page...Hi! Just happened upon you guys on Kayleigh's page... Our son is a former 23-weeker who's now 10 months old... At 8 months they discovered he has cerebellar hypoplasia, no pons, and also a missing septum pellucidem. Daxton's cerebellar space was not filled with fluid, instead, the rest of his brain has grown into the space... We've gone genetic testing and nothing has been found. Our neurologist at first diagnosed him with Joubert's Syndrome, but that has since been ruled out. We, too, have no idea what the future brings, mostly because our son is doing so much already that he shouldn't be doing... And we can't see any delays so far that can't be explained away by prematurity and being in the hospital for 8 months... So we'll just let him continue being the boss :)<BR/><BR/>At any rate, just wanted to offer you guys some support and let you know we're in a smiliar boat. Chase is so handsome, and I look forward to keeping up with your blog!Only the Sheppardshttps://www.blogger.com/profile/12746320655851190325noreply@blogger.com