Monday, December 29, 2008
I hope you all had a wonderful and peaceful Christmas!!!
Sorry it's been so long since an update, but it's been a little busy here. Chase is being kept busy with vision therapy 2x/week, OT 1x/week, PT 3x/week, plus he's seeing an OT at Children's that specializes in feeding issues every few weeks. Oh, add in the doctors appointments and trust me, we're busy! LOL
I guess I should back up a little so this all makes sense. Chase is still quite delayed in motor skills (he is now 16 months and gross motor is at a 6-9 month level). Most of this is due to his vision, but some is caused by spastic diplegic CP. His developmental specialist has scheduled an MRI for January 8th to see exactly how he is affected. The Dr feels they will find minor amounts of damage, but admits we could be surprised.
Because of the CP he is having some swallowing problems (NO aspirations! yay!). He has hypersensitivity when swallowing (gags easily) then once food hits his throat he has a delayed swallow (he doesn't know to clear his throat when there is still food there). He had a swallow study a few weeks ago and will have a scintiscan scheduled soon (to check reflux). Basically it means right now he's only eating (drinking) whole milk and high calorie Pediasure. BUT he's too skinny, the little peanut. He just hit the 20 pound mark after being 19 pounds for months on end.
He isn't crawling yet, but drags himself around now, LOL, on his belly, with his arms. His PT got him a special walker and hopefully he'll be up and running around soon. He will be in a horse riding program as well as swim therapy in the Spring to help his core strength...
One thing I have to add is that he is right where he should be with speech development. This tells everyone that cognitively he should be just fine, brilliant in fact!
He is STILL the happiest baby ever, loves to tell jokes (that only he understands of course) and LOVES to make all of us laugh.
We will update for sure after the MRI...
HAPPY NEW YEAR!!!!!