Yesterday was our follow up with Dr. Qasaymeh at Dent Neurology. This was the first time Dave was able to meet him, he couldn't make the first appointment. Nothing new on the diagnosis front. Everyone will keep researching syndromes and until they can come up with some things for genetics to start testing for (they are very specific and expensive tests at this point), they just keep looking.
Dr. Q. was THRILLED with Chase's progress just over the past 3 months. He was really surprised by his tone and muscle control. He explained it to us like this, there are 3 types of neurological disorders:
Type 1: progressive, meaning the patient progresses at his/her own rate and continues to develop, improve, get stronger and healthier..
Type 2: the type that where the patient will neither progress or regress...
Type 3: regressive, the patient loses skills
He said Chase is definitely a type one, and said, "I can't say this from a medical standpoint, but I would not be surprised if he started getting up and walking".
Sounds good to me! I don't care if he's 10! I can wait...
He's sending Chase for another MRI, we'll know the date by Monday. They're are doing a more detailed one with an MRA...
(courtesy of neurologychannel.com, lol):
A special type of magnetic resonance scan (called magnetic resonance angiography [MRA]) is used to produce images of blood vessels (e.g., arteries, veins). This test is used to detect blood vessel abnormalities such as aneurysms and atherosclerosis (i.e., plaque build-up in arteries) and to evaluate blood flow.
We were nervous about a second MRI for fear of them finding something getting worse. Dr. Q. said he feels that Chase's condition is static. He had a one time, severe hit to the brain, but it won't happen again. He also said if something were getting worse we wouldn't be seeing such great progress.
Yay! I slept really well last night.
We had another swallow study (not so much we as Chase had another one :o) ...) last Tuesday, hehe...he did great, no aspirations. He's ready to pack on the pounds. We took him home and gave him an Oreo. You would have too. Admit it!
Well, Chase has a few new tricks and we finally caught one of them on video...KISSES!!! ENJOY!