We brought Chase home Thursday afternoon and were met by a nurse from the Visiting Nurses Association. They delivered boxes of supplies including a pump for continuous overnight feeds, and Chase's very own IV pole, maybe we can put racing stripes on it! He'll get formula through the tube constantly overnight, then eat normally during the day, gradually increasing his daytime food, while weaning him off the g-tube. (Hopefully in a year or two we can have it closed up with a stitch).
He had a few minor issues the weekend following surgery, a touch of stomach virus followed by an obstructed bowel, but both were minor. He's doing fantastic!
The nurse now comes to the house once a week. Last week, 1 week after surgery, he'd gained 1 pound 5 ounces. I was SHOCKED. I knew it happened fast (and I know we adults can gain way faster than that, lol) but it took him all of 2009 to gain ONE pound!
Our other news...we have the van back!!! The modifications are fantastic! It's all electronic and amazing! THANK YOU THANK YOU THANK YOU again to everyone who helped!
And I can't leave you without some CHASE!