Monday, August 9, 2010

Saying Goodbye to the Feeding Tube

It has been only eight months since Chase got his G-Tube...and it's been two months since we used it!  We hope to be tube free by his birthday.  It's normal for kids to lose up to 10% of their weight when taken off the tube feeds, Chase has gained!!!  He's doing fantastic with food.  When he got the tube he was 20 pounds and he is now 25 pounds 6 ounces.

We had our meeting with the school district last week.  It went fantastic.  He'll be going to preschool three 1/2 days a week.  He'll be going to CHC (Center for Handicapped Children) Learning Center in Williamsville.  On the days he's in school he will have therapy with their therapists...and the AMAZING part is that the district is allowing him to keep his therapists at home the days he's out of school.  We brought a few of our girls to the meeting and I think it helped that Anissa cried, lol.  She and Chase have a special bond!

We visited CHC 2 weeks ago (then requested that Chase go there) and I was so impressed.  Their philosophy is to not hold anyone back, if Chase is ready for "traditional" school before kindergarten, they will move him on.

I went into our visit at CHC with the attitude "I'm just looking, he's going to a normal preschool".  As soon as I saw everything they had to offer, I knew I was being ridiculous.  At a traditional preschool, what would Chase do on the playground?  Where would he sit during circle time?  Who would help at lunch?  I want him to be as "normal" as possible, and CHC will help him to do what is normal for him.

I can't believe he's almost 3!  When did that happen???

I remember when he fit in my hand!   



  1. What amazing news!!!!!!!! WTG Chase!

  2. I just can't say, " YAY CHASE!!" enough! That is awesome! I can't believe our kiddos are turning three and going to preschool either! Zoe is also starting preschool in September.

  3. I can't believe how big he's gotten either. I still check your blog and am glad that things are going well. Your positive attitude is a lesson to us all.

    Mrs Kez