We saw Dr. Senn today at the Developmental Center. He's pretty much the one over seeing everything right now. He spent two hours with us and gave us a few projects to work on until we go back to see him 3 months from now. The first starts tomorrow with the visit to the surgeon. Chase lost a pound since he was last at Children's 3 weeks ago. Dr. Senn would like Chase to have the feeding tube and have him on an overnight schedule where he's on a continuous feed overnight via a pump and then bottle fed during the day. He said Chase's brain just doesn't give him that craving for food that he needs.
Next mission...to see neurosurgery on the 19th (we rescheduled the feeding clinic). Dr. Senn wants some tests run to be sure there is no problems with *blood pressures in the brain, oxygen levels in the brain, atrophy in the brain, excess pressure in the brain...etc. etc...so he's requesting an EEG, a more detailed MRI and who knows what else.
From there he wants Chase to see a Doctor (not a therapist) that specializes in bracing. He wants special braces for Chase's ankles to give them as much support as possible. (Maybe he has visions of Chase maybe walking on them one day???) He also wants his back looked at for possible bracing. He thinks the kinesio tape is too weak to support his posture.
Basically, after neurosurgery, he said if we still don't have answers, he said we can go all over the US talking to neurologists, but we still may never get a diagnosis. Then he assured us that he and everyone he talks to is extremely "intrigued" by Chase. Hm, that just reminds us of when Trey was the most interesting case in the NICU...
WE WANT TO BE BORING!!!!!
OH! He DID say that Chase is exploring, reacting, and responding age appropriately to commands etc...told you he's a genius...cerebellums ARE overrated!!!!! :*)