Johns Hopkins called, I have already scanned all of Chase's records and sent them, they are in the hands of the Medical Director at The Johns Hopkins Hospital in Baltimore. Now we're scared. It will be similar to our trip to the Children's Hospital of Philadelphia when I was pregnant with Trey. You go for a day and spend the whole day seeing multiple specialists, having tests, etc.
Chase will see a Neurologist for sure and the woman I spoke to this afternoon said the Director will likely want Chase to see other specialists. Our goal is to get closer to a diagnosis. with a miracle we could walk out with a diagnosis...that's scary. I mean, whatever he has, he already has. Once we know what it is, we have to face it...what if it's really bad? I know it's not great, he's missing a portion of his brain, but what if...
ANYHOW...HIS SUPER COOL NEW WHEELCHAIR WILL BE HERE....IN THE HOUSE....THURSDAY MORNING!!!!!!! YAY!!!!
And they say the roller coaster ends in the NICU...
No blood results from last week yet. We should know tomorrow, the nurse called for them from our peds office, they just weren't ready.
When we hear anything from anywhere we'll update here...Thanks for listening!
Have a great night! XOXO